Research progress on the application of “patient profile” based on big data in the field of nursing_West China Medical Journal

Authors：

QIN Yuan ¹ , TANG Yongfeng ² , YANG Dinghua ² ,  JIANG Xiaolian ³

1. West China School of Nursing, Sichuan University / General Medicine Department, West China TianFu Hospital, Sichuan University, Chengdu, Sichuan 610200, P. R. China;
2. Department of Anesthesiology, West China Hospital, Sichuan University / West China School of Nursing, Sichuan University, Chengdu, Sichuan 610041, P. R. China;
3. West China School of Nursing, Sichuan University / West China Hospital, Sichuan University, Chengdu, Sichuan 610041, P. R. China;

Corresponding author：

JIANG Xiaolian, Email: jiangxiaolianhl@163.com

Keywords：

Patient profile; big data; nursing

DOI：

10.7507/1002-0179.202410248

Video：

Export PDF Favorites Scan Get Citation

Abstract Full text Figures/Tables Video References Cited by

“Patient profile” is a specific application of user profile technology in the field of healthcare. As an emerging means of integrating health information, it provides personalized and precise health management for patients by analyzing multidimensional health data, improving health management effectiveness, reducing medical costs, and increasing their satisfaction and participation. It has broad application prospects in the field of nursing, but the current research status of its application in the field of nursing is not clear. This article reviews the application progress of patient profile based on big data in the field of nursing at home and abroad, systematically analyzes its construction methods, application scenarios, implementation effects and challenges, and puts forward relevant suggestions, aiming to provide references for the precise and intelligent development of nursing services.

Citation： QIN Yuan, TANG Yongfeng, YANG Dinghua, JIANG Xiaolian. Research progress on the application of “patient profile” based on big data in the field of nursing. West China Medical Journal, 2025, 40(8): 1351-1355. doi: 10.7507/1002-0179.202410248 Copy

1.	刘乐洋, 刘维维. 用户画像在卫生健康领域应用中的研究进展. 中国健康教育, 2023, 39(9): 826-831.
2.	李一男, 胡婷, 王婧婷. 基于大数据的“用户画像”在患者体验提升中的应用现状与前景展望. 中国护理管理, 2020, 20(5): 776-779.
3.	孟军. 促进健康医疗大数据应用保障“健康中国 2030”建设. 中国卫生信息管理杂志, 2016, 13(6): 539-539.
4.	Kuziemsky CE, Monkman H, Petersen C, et al. Big data in healthcare - defining the digital persona through user contexts from the micro to the macro. Contribution of the imia organizational and social issues WG. Yearb Med Inform, 2014, 9(1): 82-89.
5.	贾倩文, 蔡蕊屹, 柴春雷, 等. 数智技术驱动的服务设计研究综述. 包装工程, 2024, 45(16): 80-90.
6.	马彦秋子, 付亦安, 蒋炜. 基于患者用户画像建模的基本公共卫生服务现状质性分析. 中国公共卫生管理, 2024, 40(3): 391-394.
7.	LeRouge C, Ma J, Sneha S, et al. User profiles and personas in the design and development of consumer health technologies. Int J Med Inform, 2013, 82(11): e251-e268.
8.	王佳琪, 王一焱, 李沪生, 等. 用户画像技术在心血管疾病健康管理的应用现状. 中国慢性病预防与控制, 2022, 30(11): 868-872.
9.	Marshall R, Cook S, Mitchell V, et al. Design and evaluation: end users, user datasets and personas. Appl Ergon, 2015, 46: 311-317.
10.	Huh J, Kwon BC, Kim SH, et al. Personas in online health communities. J Biomed Inform, 2016, 63: 212-225.
11.	Serio CD, Hessing J, Reed B, et al. The effect of online chronic disease personas on activation: within-subjects and between-groups analyses. JMIR Res Protoc, 2015, 4(1): e20.
12.	刘安达, 李凯, 周颖玉, 等. 移动图书馆用户画像数据获取与隐私保护平衡机制研究. 图书馆工作与研究, 2024(6): 13-20.
13.	鞠沁怡, 林哲涵, 陈建平, 等. 大数据时代构建“患者画像”的机遇与挑战. 江苏卫生事业管理, 2021, 32(9): 1140-1142.
14.	孙莹. 国际数字医学的研究热点与前沿进展. 中国组织工程研究, 2024, 29(13): 2639.
15.	潘刘庆. 基于大数据下纠纷患者画像构建对医院安全管理的意义. 中国卫生标准管理, 2024, 15(14): 1-4.
16.	段甲存. 基于用户画像的在线健康社区老年用户精准推荐服务研究. 哈尔滨: 黑龙江大学, 2023.
17.	殷允杰, 朱媛媛. 智能推荐情境下老年在线健康社区的用户信息需求模型构建及其应用研究. 情报科学, 2023, 41(8): 155-161.
18.	章马兰, 张涵慈, 李涛, 等. 康复科住院患者国际功能、残疾和健康分类康复组合功能画像的聚类分析研究. 中国康复医学杂志, 2025, 40(2): 188-195.
19.	Zhang B, Li Y. A user profile of tendering and bidding corruption in the construction industry based on SOM clustering: a case study of China. Buildings (Basel), 2022, 12(12): 2103.
20.	Yang X, Zhang C, Li Y, et al. Dynamic user profile construction and its application to smart product-service system design: a maternity-oriented case study. Expert Syst Appl, 2024, 249(4): 123772.
21.	Li Y, Liu C, Hu X, et al. IGA-SOMK++: a new clustering method for constructing web user profiles of older adults in China. Appl Intell, 2024, 54(8): 1-31.
22.	Liu X, Xu Y, Yang X. Disease profiling in pharmaceutical E-commerce. Expert Syst Appl, 2021, 178(21): 115015.
23.	常冬春, 张茹, 管晴, 等. 健康画像在慢性病管理中的应用研究进展. 南京医科大学学报(社会科学版), 2023, 23(6): 546-550.
24.	蔡明成, 范守城, 杨艳, 等. 用户画像技术及其在科技特派员服务领域的应用研究进展. 南方农业, 2022, 16(11): 156-159.
25.	Haldane V, Koh JJK, Srivastava A, et al. User preferences and persona design for an mhealth intervention to support adherence to cardiovascular disease medication in singapore: a multi-method study. JMIR Mhealth Uhealth, 2019, 7(5): e10465.
26.	Gentile M, De Luca V, Patalano R, et al. Innovative approaches to service integration addressing the unmet needs of irritable bowel syndrome patients and new approaches for the needs of IBS patients. Front Med (Lausanne), 2022, 9: 998838.
27.	李心钰, 张男, 宋美璇, 等. 化疗期乳腺癌患者体质量管理的用户画像研究. 护理学杂志, 2022, 37(18): 33-36.
28.	蒋璐璐, 王喜益, 胡韵. 基于用户画像的年轻乳腺癌生存者综合需求的调查研究. 解放军护理杂志, 2022, 39(6): 26-30.
29.	徐婷婷, 张元红, 李桂英, 等. 画像式患者跌倒风险评估表的设计与应用. 护理学杂志, 2023, 38(12): 56-59.
30.	刘风景, 张广意, 米光丽, 等. 妊娠期妇女体质量自我管理的定性用户画像研究. 护理学杂志, 2023, 38(16): 23-27.
31.	Xu Z, Gu Y, Xu X, et al. Developing a personalized meal recommendation system for chinese older adults: observational cohort study. JMIR Form Res, 2024, 8: e52170.
32.	Larkin C, Djamasbi S, Boudreaux ED, et al. ReachCare mobile Apps for patients experiencing suicidality in the emergency department: development and usability testing using mixed methods. JMIR Form Res, 2023, 7: e41422.
33.	Reimer LM, Nissen L, von Scheidt M, et al. User-centered development of an mHealth App for cardiovascular prevention. Digit Health, 2024, 10: 20552076241249269.
34.	Li S, Tang Y. A simple framework of smart geriatric nursing considering health big data and user profile. Comput Math Methods Med, 2020, 2020: 5013249.
35.	Tan X, He Y, Hua N, et al. Study protocol of an App-based prevention program for perinatal depression. Int J Environ Res Public Health, 2022, 19(18): 11634.
36.	Donald M, Beanlands H, Straus S, et al. Preferences for a self-management e-health tool for patients with chronic kidney disease: results of a patient-oriented consensus workshop. CMAJ Open, 2019, 7(4): E713-E720.
37.	周锐, 黄静, 范嘉祺. 突发公共卫生事件大数据画像构建研究. 电子政务, 2020(6): 12-20.

1. 刘乐洋, 刘维维. 用户画像在卫生健康领域应用中的研究进展. 中国健康教育, 2023, 39(9): 826-831.
2. 李一男, 胡婷, 王婧婷. 基于大数据的“用户画像”在患者体验提升中的应用现状与前景展望. 中国护理管理, 2020, 20(5): 776-779.
3. 孟军. 促进健康医疗大数据应用保障“健康中国 2030”建设. 中国卫生信息管理杂志, 2016, 13(6): 539-539.
4. Kuziemsky CE, Monkman H, Petersen C, et al. Big data in healthcare - defining the digital persona through user contexts from the micro to the macro. Contribution of the imia organizational and social issues WG. Yearb Med Inform, 2014, 9(1): 82-89.
5. 贾倩文, 蔡蕊屹, 柴春雷, 等. 数智技术驱动的服务设计研究综述. 包装工程, 2024, 45(16): 80-90.
6. 马彦秋子, 付亦安, 蒋炜. 基于患者用户画像建模的基本公共卫生服务现状质性分析. 中国公共卫生管理, 2024, 40(3): 391-394.
7. LeRouge C, Ma J, Sneha S, et al. User profiles and personas in the design and development of consumer health technologies. Int J Med Inform, 2013, 82(11): e251-e268.
8. 王佳琪, 王一焱, 李沪生, 等. 用户画像技术在心血管疾病健康管理的应用现状. 中国慢性病预防与控制, 2022, 30(11): 868-872.
9. Marshall R, Cook S, Mitchell V, et al. Design and evaluation: end users, user datasets and personas. Appl Ergon, 2015, 46: 311-317.
10. Huh J, Kwon BC, Kim SH, et al. Personas in online health communities. J Biomed Inform, 2016, 63: 212-225.
11. Serio CD, Hessing J, Reed B, et al. The effect of online chronic disease personas on activation: within-subjects and between-groups analyses. JMIR Res Protoc, 2015, 4(1): e20.
12. 刘安达, 李凯, 周颖玉, 等. 移动图书馆用户画像数据获取与隐私保护平衡机制研究. 图书馆工作与研究, 2024(6): 13-20.
13. 鞠沁怡, 林哲涵, 陈建平, 等. 大数据时代构建“患者画像”的机遇与挑战. 江苏卫生事业管理, 2021, 32(9): 1140-1142.
14. 孙莹. 国际数字医学的研究热点与前沿进展. 中国组织工程研究, 2024, 29(13): 2639.
15. 潘刘庆. 基于大数据下纠纷患者画像构建对医院安全管理的意义. 中国卫生标准管理, 2024, 15(14): 1-4.
16. 段甲存. 基于用户画像的在线健康社区老年用户精准推荐服务研究. 哈尔滨: 黑龙江大学, 2023.
17. 殷允杰, 朱媛媛. 智能推荐情境下老年在线健康社区的用户信息需求模型构建及其应用研究. 情报科学, 2023, 41(8): 155-161.
18. 章马兰, 张涵慈, 李涛, 等. 康复科住院患者国际功能、残疾和健康分类康复组合功能画像的聚类分析研究. 中国康复医学杂志, 2025, 40(2): 188-195.
19. Zhang B, Li Y. A user profile of tendering and bidding corruption in the construction industry based on SOM clustering: a case study of China. Buildings (Basel), 2022, 12(12): 2103.
20. Yang X, Zhang C, Li Y, et al. Dynamic user profile construction and its application to smart product-service system design: a maternity-oriented case study. Expert Syst Appl, 2024, 249(4): 123772.
21. Li Y, Liu C, Hu X, et al. IGA-SOMK++: a new clustering method for constructing web user profiles of older adults in China. Appl Intell, 2024, 54(8): 1-31.
22. Liu X, Xu Y, Yang X. Disease profiling in pharmaceutical E-commerce. Expert Syst Appl, 2021, 178(21): 115015.
23. 常冬春, 张茹, 管晴, 等. 健康画像在慢性病管理中的应用研究进展. 南京医科大学学报(社会科学版), 2023, 23(6): 546-550.
24. 蔡明成, 范守城, 杨艳, 等. 用户画像技术及其在科技特派员服务领域的应用研究进展. 南方农业, 2022, 16(11): 156-159.
25. Haldane V, Koh JJK, Srivastava A, et al. User preferences and persona design for an mhealth intervention to support adherence to cardiovascular disease medication in singapore: a multi-method study. JMIR Mhealth Uhealth, 2019, 7(5): e10465.
26. Gentile M, De Luca V, Patalano R, et al. Innovative approaches to service integration addressing the unmet needs of irritable bowel syndrome patients and new approaches for the needs of IBS patients. Front Med (Lausanne), 2022, 9: 998838.
27. 李心钰, 张男, 宋美璇, 等. 化疗期乳腺癌患者体质量管理的用户画像研究. 护理学杂志, 2022, 37(18): 33-36.
28. 蒋璐璐, 王喜益, 胡韵. 基于用户画像的年轻乳腺癌生存者综合需求的调查研究. 解放军护理杂志, 2022, 39(6): 26-30.
29. 徐婷婷, 张元红, 李桂英, 等. 画像式患者跌倒风险评估表的设计与应用. 护理学杂志, 2023, 38(12): 56-59.
30. 刘风景, 张广意, 米光丽, 等. 妊娠期妇女体质量自我管理的定性用户画像研究. 护理学杂志, 2023, 38(16): 23-27.
31. Xu Z, Gu Y, Xu X, et al. Developing a personalized meal recommendation system for chinese older adults: observational cohort study. JMIR Form Res, 2024, 8: e52170.
32. Larkin C, Djamasbi S, Boudreaux ED, et al. ReachCare mobile Apps for patients experiencing suicidality in the emergency department: development and usability testing using mixed methods. JMIR Form Res, 2023, 7: e41422.
33. Reimer LM, Nissen L, von Scheidt M, et al. User-centered development of an mHealth App for cardiovascular prevention. Digit Health, 2024, 10: 20552076241249269.
34. Li S, Tang Y. A simple framework of smart geriatric nursing considering health big data and user profile. Comput Math Methods Med, 2020, 2020: 5013249.
35. Tan X, He Y, Hua N, et al. Study protocol of an App-based prevention program for perinatal depression. Int J Environ Res Public Health, 2022, 19(18): 11634.
36. Donald M, Beanlands H, Straus S, et al. Preferences for a self-management e-health tool for patients with chronic kidney disease: results of a patient-oriented consensus workshop. CMAJ Open, 2019, 7(4): E713-E720.
37. 周锐, 黄静, 范嘉祺. 突发公共卫生事件大数据画像构建研究. 电子政务, 2020(6): 12-20.

Previous Article
Research progress on predictive models for inadvertent perioperative hypothermia in adult
Next Article
程序性细胞死亡蛋白-1抑制剂引发内分泌系统免疫相关不良反应三例

West China Medical Journal

Research progress on the application of “patient profile” based on big data in the field of nursing

Abstract Full text Figures/Tables Video References Cited by

Previous Article

Next Article

Format

Content