Clinical study on the management of children with epilepsy based on WeChat platform_Journal of Epilepsy

Authors：

TANG Qianqian , CHEN Rong , LUO Shuzhen ,  CHEN Yanhui

Union Clinical Medical College, Fujian Medical University, Fuzhou 350001, China;

Corresponding author：

CHEN Yanhui, Email: 893323606@qq.com

Keywords：

Epilepsy; Disease management; WeChat platform; Children

DOI：

10.7507/2096-0247.20180022

Video：

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Objective To explore the feasibility and clinical effect of management of children with epilepsy based on WeChat platform. Methods The WeChat platform for management of children epilepsy was designed according to the idea of the management of chronic diseases. The objective and control groups were investigated by the case-control study. Eighty children with epilepsy who took part in the platform were served as the experimental group. At the same time, 80 children with epilepsy who did not take part in the platform were served as the control group. The questionnaire of basic conditions and users’ perceived acceptance and usage of the platform designed by ourselves were used to collect related information. Results Sixty parents of children with epilepsy continuously used the platform and among them 48 parents (80.0%) had high satisfaction degree of the platform. The factors which affected the satisfaction degree of the platform among basic conditions included whether the users were busy, the comprehensive degree of knowledge about epilepsy before they took part in the study and the degree of taking medicine on time(P<0.05).There were no differences in satisfaction degree among different children sex, residence, parents’ sex, education level, approaches and willingness of knowledge acquisition(P>0.05). Follow-up of 60 children with epilepsy who had been in the platform for 6 months showed total effective rate was 96.7%, while the total effective rate of the control group was 81.4%. Conclusions Management of children with epilepsy based on WeChat platform is feasible and well accepted. Not only does it contribute to standard long-term management of children epilepsy and health education, but also it improves the efficiency of clinical treatment. It is a new way of the management of children with epilepsy.

Citation： TANG Qianqian, CHEN Rong, LUO Shuzhen, CHEN Yanhui. Clinical study on the management of children with epilepsy based on WeChat platform. Journal of Epilepsy, 2018, 4(2): 106-111. doi: 10.7507/2096-0247.20180022 Copy

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2.	冯文. 我国儿科医疗服务状况分析. 中国医院, 2012, 116(8): 19-21.
3.	儿童癫痫长程管理专家共识. 中华儿科杂志, 2013, 51(9): 699-703.
4.	唐丹妮, 方荣华, 马青, 等. 微信平台在高脂血症患者治疗依从性中的实践效果研究. 华西医学, 2014, 29(5): 838-840.
5.	程秀丽, 刘严迪, 李菲. 基于微信平台多媒体形式的延续护理在糖尿病患者教育中的应用. 国际老年医学杂志, 2014, 35(5): 214-216.
6.	Engel J Jr. A proposed diagnostic scheme for people with epileptic seizures and with epilepsy: report of the ILAE Task Force on Classification and Terminology. Epilepsia, 2001, 42(6): 796-803.
7.	孙建军, 成颖, 柯青. TAM模型研究进展——模型演化. 情报科学, 2007, 25(8): 1121-1127.
8.	郑磊. 微信用户采纳影响因素研究. 北京: 北京邮电大学, 硕士学位论文, 2013.
9.	曾明珠, 郑淑鹏. 用药日记对癫痫患者服药依从性影响的探讨. 福建医药杂志, 2013, 35(2): 174-175.
10.	Liu J, Liu Z, Zhang Z, et al. Internet usage for health information by patients with epilepsy in China. Seizure, 2013, 22(9): 787-790.
11.	张晓飞. 基于现状偏差理论的在线医疗服务采纳阻碍因素研究. 哈尔滨: 哈尔滨工业大学, 硕士学位论文, 2014.
12.	张洁. 爱心、信心、耐心: 儿童癫痫长程管理的关键. 中华医学信息导报, 2013, 28(12): 16-17.
13.	Mittan RJ. Psychosocial treatment programs in epilepsy: a review. Epilepsy Behav, 2009, 16(3): 371-380.
14.	Siqueira NF, Oliveira FL, Siqueira JA, et al. In adolescents with epilepsy, high scores of anxiety and depression are associated with occurrence of seizures in public places. Arquivos De Neuro-psiquiatria, 2015, 73(3): 205-211.
15.	Austin JK, Shafer PO, Deering JB. Epilepsy familiarity, knowledge, and perceptions of stigma: report from a survey of adolescents in the general population. Epilepsy Behav, 2002, 3(4): 368-375.
16.	Hixson JD, Barnes D, Parko K, et al. Patients optimizing epilepsy management via an online community: the POEM Study. Neurology, 2015, 85(2): 129-136.
17.	Tattersall RL. The expert patient: a new approach to chronic disease management for the twenty-first century. Clinical Medicine, 2002, 2(3): 227-229.
18.	赵敬, 李贝. 微信公众平台发展现状初探. 新闻实践, 2013, 2013(8): 8-10.
19.	詹恂, 严星. 微信使用对人际传播的影响研究. 中国传媒大学学报, 2013, 2013(12): 112-117.
20.	The Statistics Portal :Number of monthly active WeChat users from 2nd quarter 2011 to 2nd quarter 2016(in millions). http://www.statista.com/statistics/255778/number-of-active-wechat-messenger-accounts/.Accessed 2016.
21.	Snape D, Wang W, Wu J, et al. Knowledge gaps and uncertainties about epilepsy: findings from an ethnographic study in China. Epilepsy Behav, 2009, 14(1): 172-178.
22.	Wang W, Zhao D, Wu J, et al. Changes in knowledge, attitude, and practice of people with epilepsy and their families after an intervention in rural China. Epilepsy Behav, 2009, 16(1): 76-79.
23.	何小敏, 黄伟侨, 容颖慈. 规范药物治疗儿童癫痫的重要性. 中国实用医药, 2009, 4(36): 44-45.
24.	Faught RE, Duh M, Weiner J, et al. Nonadherence to antiepileptic drugs and increased mortality: findings from the RANSOM Study. Neurology, 2008, 71(20): 1572-1578.
25.	Faught RE, Weiner J, Guérin A, et al. Impact of nonadherence to antiepileptic drugs on health care utilization and costs: findings from the RANSOM study. Epilepsia, 2009, 50(3): 501-509.
26.	何小敏, 黄伟侨, 容颖慈. 规范药物治疗儿童癫痫的重要性. 中国实用医药, 2009, 4(36): 44-45.

1. 秦炯. 关注癫痫儿童的精神行为障碍. 中国儿童保健杂志, 2010, 18(4): 272-274.
2. 冯文. 我国儿科医疗服务状况分析. 中国医院, 2012, 116(8): 19-21.
3. 儿童癫痫长程管理专家共识. 中华儿科杂志, 2013, 51(9): 699-703.
4. 唐丹妮, 方荣华, 马青, 等. 微信平台在高脂血症患者治疗依从性中的实践效果研究. 华西医学, 2014, 29(5): 838-840.
5. 程秀丽, 刘严迪, 李菲. 基于微信平台多媒体形式的延续护理在糖尿病患者教育中的应用. 国际老年医学杂志, 2014, 35(5): 214-216.
6. Engel J Jr. A proposed diagnostic scheme for people with epileptic seizures and with epilepsy: report of the ILAE Task Force on Classification and Terminology. Epilepsia, 2001, 42(6): 796-803.
7. 孙建军, 成颖, 柯青. TAM模型研究进展——模型演化. 情报科学, 2007, 25(8): 1121-1127.
8. 郑磊. 微信用户采纳影响因素研究. 北京: 北京邮电大学, 硕士学位论文, 2013.
9. 曾明珠, 郑淑鹏. 用药日记对癫痫患者服药依从性影响的探讨. 福建医药杂志, 2013, 35(2): 174-175.
10. Liu J, Liu Z, Zhang Z, et al. Internet usage for health information by patients with epilepsy in China. Seizure, 2013, 22(9): 787-790.
11. 张晓飞. 基于现状偏差理论的在线医疗服务采纳阻碍因素研究. 哈尔滨: 哈尔滨工业大学, 硕士学位论文, 2014.
12. 张洁. 爱心、信心、耐心: 儿童癫痫长程管理的关键. 中华医学信息导报, 2013, 28(12): 16-17.
13. Mittan RJ. Psychosocial treatment programs in epilepsy: a review. Epilepsy Behav, 2009, 16(3): 371-380.
14. Siqueira NF, Oliveira FL, Siqueira JA, et al. In adolescents with epilepsy, high scores of anxiety and depression are associated with occurrence of seizures in public places. Arquivos De Neuro-psiquiatria, 2015, 73(3): 205-211.
15. Austin JK, Shafer PO, Deering JB. Epilepsy familiarity, knowledge, and perceptions of stigma: report from a survey of adolescents in the general population. Epilepsy Behav, 2002, 3(4): 368-375.
16. Hixson JD, Barnes D, Parko K, et al. Patients optimizing epilepsy management via an online community: the POEM Study. Neurology, 2015, 85(2): 129-136.
17. Tattersall RL. The expert patient: a new approach to chronic disease management for the twenty-first century. Clinical Medicine, 2002, 2(3): 227-229.
18. 赵敬, 李贝. 微信公众平台发展现状初探. 新闻实践, 2013, 2013(8): 8-10.
19. 詹恂, 严星. 微信使用对人际传播的影响研究. 中国传媒大学学报, 2013, 2013(12): 112-117.
20. The Statistics Portal :Number of monthly active WeChat users from 2nd quarter 2011 to 2nd quarter 2016(in millions). http://www.statista.com/statistics/255778/number-of-active-wechat-messenger-accounts/.Accessed 2016.
21. Snape D, Wang W, Wu J, et al. Knowledge gaps and uncertainties about epilepsy: findings from an ethnographic study in China. Epilepsy Behav, 2009, 14(1): 172-178.
22. Wang W, Zhao D, Wu J, et al. Changes in knowledge, attitude, and practice of people with epilepsy and their families after an intervention in rural China. Epilepsy Behav, 2009, 16(1): 76-79.
23. 何小敏, 黄伟侨, 容颖慈. 规范药物治疗儿童癫痫的重要性. 中国实用医药, 2009, 4(36): 44-45.
24. Faught RE, Duh M, Weiner J, et al. Nonadherence to antiepileptic drugs and increased mortality: findings from the RANSOM Study. Neurology, 2008, 71(20): 1572-1578.
25. Faught RE, Weiner J, Guérin A, et al. Impact of nonadherence to antiepileptic drugs on health care utilization and costs: findings from the RANSOM study. Epilepsia, 2009, 50(3): 501-509.
26. 何小敏, 黄伟侨, 容颖慈. 规范药物治疗儿童癫痫的重要性. 中国实用医药, 2009, 4(36): 44-45.

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