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find Keyword "病耻感" 4 results
  • 国际抗癫痫联盟心理工作组循证建议:成人和儿童癫痫患者的心理治疗

    社会心理因素和癫痫治疗可能对癫痫患者及其家庭的健康相关生活质量(Health-related quality of life,HRQOL)产生显著影响,临床上广泛关注心理评估和治疗在改善 HRQOL 和癫痫共病中的作用。因此,国际抗癫痫联盟(ILAE)委托心理工作组,基于其最近对癫痫患者心理治疗的 Cochrane 回顾证据的评估,制定了相关临床建议。近期关于癫痫患者心理治疗随机对照试验的 Cochrane 回顾是本文的主要证据来源。为提供具有实用意义的指导,我们根据美国神经病学学会证据水平系统以及推荐分级、评估、开发和评价系统对研究设计进行评级。本文是儿童和成人心理学家、神经病学家、精神病学家和神经精神病学家进行国际合作的顶点。ILAE 执行委员会审查并批准了这一进程和结论。心理干预的最强证据被确定为最常见的心理健康问题,包括抑郁症、神经认知障碍和药物依从性。针对提高 HRQOL 和依从性以及减少共病症状(焦虑、抑郁)的心理干预应纳入癫痫综合护理中。一系列的心理策略(如认知行为疗法和正念疗法)为提升癫痫患者生活质量带来希望,也给癫痫临床工作者提供了治疗癫痫共病、应对挑战的临床建议。

    Release date:2019-07-15 02:48 Export PDF Favorites Scan
  • Incidence of stigma and its influencing factors in chronic kidney disease patients without dialysis

    Objective To understand the incidence of stigma in non-dialysis chronic kidney disease (CKD) patients, and to explore its influencing factors, so as to provide a basis for scientific management of non-dialysis CKD patients. Methods Convenience sampling method was used to select non-dialysis CKD patients hospitalized in the Department of Nephrology, West China Hospital, Sichuan University between December 2019 and December 2020 as the research subjects. The general information questionnaire, Social Impact Scale and Social Support Rating Scale were used to investigate, and logistic regression analysis was used to explore the influencing factors of stigma in CKD patients without dialysis. Results A total of 300 questionnaires were distributed in this study, and 272 valid questionnaires were recovered, with an effective recovery rate of 90.67%. The age of the patients ranged from 15 to 83 years old, with an average of (38.34±13.64) years old. The disease course ranged from 1 month to 18 years, with a median of 3 years. The patients’ stigma score ranged from 23 to 86 points, with an average score of (40.14±1.67) points, of which 101 patients had a score of ≥48 (with stigma), accounting for 37.13%. Logistic regression analysis showed that gender [odds ratio (OR)=1.871, 95% confidence interval (CI) (1.018, 3.347), P=0.042], place of residence [OR=2.991, 95%CI (1.645, 5.824), P=0.001], personal monthly income [OR=0.575, 95%CI (0.260, 0.857), P=0.013], received CKD self-management education or not [OR=0.468, 95%CI (0.258, 0.843), P=0.011], and social support level [OR=0.418, 95%CI (0.230, 0.737), P=0.003] were influencing factors of stigma in CKD patients without dialysis. Conclusion The stigma of non-dialysis CKD patients is at a moderate level. Female, living in rural areas, personal monthly income ≤ 3000 yuan, not receiving CKD self-management education, and low social support level are risk factors for stigma in non-dialysis CKD patients.

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  • 癫痫患者病耻感对社交回避和苦恼影响的研究进展

    癫痫是一种常见的神经系统疾病,其患者往往伴随有焦虑、抑郁、自卑等消极情绪导致了对社交回避和苦恼,产生了较强的病耻感,严重影响其身心健康和生活质量。本文聚焦于癫痫患者这一特殊的社会群体,认真梳理了癫痫患者的病耻感产生的根本原因,详细阐述了病耻感对其生活质量、病情恢复、社会关系等方面的负面影响,分析了病耻感对其社交回避、苦恼的所产生的直接作用;最后,笔者根据前文分析的问题以及原因情况,并结合对癫痫患者的治疗实践,提出了改善癫痫患者社交状况、降低病耻感的具体干预措施,即帮助患者培养良好的自尊和缓解患者心态,以期为提高癫痫患者这一特殊社会群体的社会认可度和生活幸福度提供些许参考。

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  • Current status of stigma of disease in patients with epilepsy and its influencing factors

    ObjectiveTo analyze the current the sense of shame and its influencing factors in patients with epilepsy. Methods The research subjects selected information from 103 epilepsy patients who were hospitalized at the Affiliated Brain Hospital of Guangzhou Medical University from January 1, 2023 to December 31, 2023. The self-made General Information Questionnaire, social impact scale (SIS), social avoidance and distress scale, self-concealment scale and self-esteem scale were used to collect information. Pearson method was used to analyze the correlation between the score of SIS and the scores of social avoidance and distress scale, self-concealment scale and self-esteem scale Multiple linear regression model was used to analyze the factors affecting SIS score.Statistically, P<0.05 was considered statistically significant. Results The score of SIS was (58.40±12.649) .According to statistical analysis of Pearson’s results, the SIS score of patients with epilepsy was found to be positively correlated with the scores in the three tables above (all P<0.05). Multiple Regression analysis analysis showed that family income, social avoidance and distress scale, self-concealment scale and self-esteem scale were the influential factors of SIS score in epilepsy patients (all P<0.05). ConclusionClinical workers should pay close attention to the psychological changes of patients with epilepsy and do a good job in psychological nursing, so as to improve the quality of life of patients.

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